A ray of hope for Ongole siblings suffering from rare genetic disorder

July 22, 2021 12:45 am | Updated 12:45 am IST - ONGOLE

Seven-year-old Lashith Venkata Naga Ayyan and his brother Mokshith, who are suffering from spinal muscular atrophy, a rare genetic disorder, hope for a cure as the Jana Sena Party has promised to take up their cause.

JSP Prakasam president Sk. Riaz, who met the siblings on Wednesday, assured their father D. Vinay Kumar to arrange for financial aid. He presented Mr. Vinay Kumar a cheque for ₹30,000 as his personal contribution and urged the Union and State governments to create a fund to ensure treatment to such children.

The parents of the children had took to crowdfunding route through ImpactGuru to meet the cost of treatment of around ₹16 crore. It is still a long way to get the needed money as they could raise over ₹30 lakh so far with more than 1000 persons chipping in with their contributions. Mr. Vinay Kumar appealed to people to contribute for the cause.

0 / 0
Sign in to unlock member-only benefits!
  • Access 10 free stories every month
  • Save stories to read later
  • Access to comment on every story
  • Sign-up/manage your newsletter subscriptions with a single click
  • Get notified by email for early access to discounts & offers on our products
Sign in

Comments

Comments have to be in English, and in full sentences. They cannot be abusive or personal. Please abide by our community guidelines for posting your comments.

We have migrated to a new commenting platform. If you are already a registered user of The Hindu and logged in, you may continue to engage with our articles. If you do not have an account please register and login to post comments. Users can access their older comments by logging into their accounts on Vuukle.